mom & i in greece, 2008 |
It was a year and 11 days ago Sunday (19 August) that Mom found out her diagnosis of pancreatic
cancer. I found out a day later. I don't think any of us knew what to
expect, and to some degree, we still don't.
I went home for a week in mid-August to spend time with family which was much needed. I was mentally and emotionally prepared to see Mom without her wig, and it only freaked me out because she looked exactly like her mother (genetics, I tell ya). However, with the wig, you'd never know anything was wrong with her. Fortunately, the chemo does not hinder her from doing daily activities or excursions (such as an Orioles game until 1 am) - but she does tire easily. Again,if this is one of the only side effects, it's a win in my book.
I also had the opportunity to take her to her chemo appointment at Johns Hopkins during my visit. It was something I knew I had to do, and something I wanted to do - even with my dislike of hospitals (probably because I've been in too many of them). The appointment takes a full day; I really thought Dad was kidding about that. However, after meeting Shawna (Mom's nurse) and other staff, I'm assured that she is in excellent hands. Since I had plenty of time to sit and wait, I realized how well-off Mom is compared to other patients. Mom went up to register herself, didn't have a walker and doesn't have to wear a surgical mask (the germ factor). I was also shocked to see how young (and worse-off than Mom) some of the patients where - I'm sure about 33% where younger than me. I came away appreciating my own health and in the grand scheme, allergies and crappy knees really aren't that big of a deal.
I went home for a week in mid-August to spend time with family which was much needed. I was mentally and emotionally prepared to see Mom without her wig, and it only freaked me out because she looked exactly like her mother (genetics, I tell ya). However, with the wig, you'd never know anything was wrong with her. Fortunately, the chemo does not hinder her from doing daily activities or excursions (such as an Orioles game until 1 am) - but she does tire easily. Again,if this is one of the only side effects, it's a win in my book.
I also had the opportunity to take her to her chemo appointment at Johns Hopkins during my visit. It was something I knew I had to do, and something I wanted to do - even with my dislike of hospitals (probably because I've been in too many of them). The appointment takes a full day; I really thought Dad was kidding about that. However, after meeting Shawna (Mom's nurse) and other staff, I'm assured that she is in excellent hands. Since I had plenty of time to sit and wait, I realized how well-off Mom is compared to other patients. Mom went up to register herself, didn't have a walker and doesn't have to wear a surgical mask (the germ factor). I was also shocked to see how young (and worse-off than Mom) some of the patients where - I'm sure about 33% where younger than me. I came away appreciating my own health and in the grand scheme, allergies and crappy knees really aren't that big of a deal.
This has also been a learning experience. I - along with my family - have researched pancreatic cancer extensively. I won't talk about the statistics, as they are not uplifting by any means. Sadly, I've had three friends lose a parent to this disease; and Mom has survived longer than any of them. The only good thing (if any) about that is that I have support from friends who know EXACTLY what is going on. But knowing is half the battle (thank you GI Joe) - the other is imparting that knowledge. I educate anyone who will listen - whether they want to hear about it or not. The more who know, the more we can continue the fight.
Finally, this journey has made me fully aware of the power of the human
psyche. Attitude and the mind from which it springs is the biggest,
baddest, and
best weapon we have against this bitch of a disease. It's all about
perspective - being angry or upset isn't going to help anyone at this
point. Hope and strength will.
I have always said (and likely always will say) that I can only hope to handle whatever life throws at me with half the grace, courage and positivity Mom has exhibited in the past year. She truly is an inspiration to us all.
for more information or to donate, check out the Pancreatic Cancer Action Network